Navigating the complexities of fundraising for a rare disease presents a significant challenge that we have undertaken with great commitment. The array of issues confronting the global community and the scientific sector is vast; however, the impact on individuals affected by these rare conditions remains profoundly serious. At present, our focus is on developing a therapy for RP/BBS1. Yet, our objectives have expanded to encompass advocacy for all individuals impacted by rare diseases, particul
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Navigating the complexities of fundraising for a rare disease presents a significant challenge that we have undertaken with great commitment. The array of issues confronting the global
A Race Against Blindness. . Navigating the complexities of fundraising for a rare disease presents a significant challenge that we have undertaken with great commitment. The array of issues confronting the global community and the scientific sector is vast; however, the impact on individuals affected by these rare conditions remains profoundly ...
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